When dealing with a rare cancer like mesothelioma, searching for support can be a challenge because few people know the intricacies of the disease. But that’s where we can help. We have qualified Patient Advocates who can guide you to treatment centers and the best specialists near you. A licensed mental health counselor hosts monthly online support groups where patients and their loved ones can share their experiences.
We have a U.S. Army veteran who knows how this deadly disease affects veterans who worked in shipyards or other U.S. military facilities. He helps veterans get VA Disability Compensation for asbestos-related illnesses. In addition to that human touch, we also can provide you with informational books on mesothelioma, bracelets to show your support for raising awareness and other educational literature.
Get in touch with one of our Patient Advocates. They can start you on the right path.
Join one of our monthly online support groups and share your story or listen to what others have to say about living with the disease.
Our Patient Advocates also can send you a packet that contains informational materials to help answer any questions.
Dana is the monthly support group moderator. She is a licensed mental health counselor who has experience with inpatient and outpatient counseling, and clinical research in the U.S. and Australia. Dana offers individual and family counseling, and she speaks regularly at regional and national conferences, community organizations and professional roundtables. Her specialty: Helping patients cope with cancer, heart disease and other serious illnesses.
Karen is a registered nurse and Patient Advocate. As a former director of a tissue bank, Karen understands the unique needs and personal goals of each patient and their caregivers. Also, her experience in surgery and oncology has prepared her well for providing outreach opportunities to mesothelioma patients. Karen holds a Bachelor of Science in Nursing from the University of South Alabama and her MBA from the University of Central Florida.
We offer a variety of support options to help you or your loved one understand the disease, find information about treatment or express your experiences dealing with mesothelioma in a community of others going through the same process.
Our licensed mental health counselor Dana Nolan hosts these monthly online support groups. She begins each session with an educational presentation and then opens the meeting for questions and comments. She later turns over the discussion to patients and caregivers who want to share their experiences.
Dana moderates these sessions and ensures that no one is given unsolicited advice from other members. If a participant does not want to share their story, they don’t have to. They can just listen, too.
Our Veterans Department is well-versed on how the U.S. Department of Veterans Affairs works when it comes to handling VA claims for disability. We guide veterans through an eligibility process, determine if illness is a result of exposure to asbestos, and if it happened while they were actively serving in the U.S. military. Then we work on filing a VA claim for Disability Compensation.
Our team will help veterans submit the required documents, as well as a complete summary of asbestos exposure so the VA can approve compensation.
Our team of Patient Advocates can answer a variety of questions you may have about mesothelioma, prognosis and treatment, among other topics. They also can suggest treatment centers based on your particular type of asbestos-related disease, and help you find the best specialist.
In addition to those services, Patient Advocates also can find financial aid for you through bankruptcy trusts, grants and charities that offer travel options. They also can suggest legal action, including filing a personal injury lawsuit or wrongful death claim, depending on the situation.
Community is an important part of building support for people diagnosed with mesothelioma. What better way to show that support than by wearing one of our awareness wristbands. While the wristbands offer no medical benefits, they show you are trying to raise awareness about a rare and deadly disease.
Raising awareness has deeper implications. The more the illness is discussed, the more researchers will work on developing a cure and better treatment options. Patients already are living longer lives thanks to improved therapies, but much more can be accomplished.
Thanks to technology, we can find answers to almost anything on the Web, but what happens when you’re searching for answers on a rare disease like mesothelioma? It’s much harder to find that information from reputable sources. Our experienced Patient Advocates have provided some answers to frequently asked questions.
While these are guidelines followed by most doctors, we prefer to frame the staging as early-stage or late-stage cancer. That allows us to give you a better understanding of the treatment options available.
First, we’ll walk you through which type of mesothelioma and stage you’ve been diagnosed. Once we do that, we can suggest which specialist works best for you, as well as if insurance will cover the costs of your treatment.
Many times, people don’t understand that term. You may see different figures on different websites, and your doctors may give different time spans. We can help walk you through what life expectancy uniquely means to you.
Most treatment centers follow the same procedure. They ask patients to arrive a day earlier for scans, then they guide them through a new patient orientation program that explains everything to them. They might need additional blood test or biopsies. Patients should expect to stay about three days.
A diet high in meat, dairy products, and fats is generally recommended for patients undergoing radiation or surgery. However, chemotherapy tends to cause nausea and loss of appetite from stress and strong medications. Because nutritional needs change throughout treatment, so will diets. The best advice: Ask your doctor or dietician for specific nutritional requirements.